https://content.thewest.com.au/publication/slug/turnbull-praises-world-class-telethon-research-facility-ng-b88553607z
{"_self":"https://thewest.com.au/news/wa/turnbull-praises-world-class-telethon-research-facility-ng-b88553607z","id":"B88553607Z","kind":"article","slug":"turnbull-praises-world-class-telethon-research-facility-ng-b88553607z","status":"live","source":"The West Australian","publicationDate":"2017-08-01T21:30:00.000Z","created":"2017-08-01T12:53:09.531Z","lastUpdated":"2017-08-01T12:53:09.531Z","primaryTopic":"news/wa","secondaryTopics":["politics","news/charity","news/education"],"assets":[{"kind":"image","id":"GRN15ILUF.1","name":"010817genmalcolm1","captionText":"POOL PIC - Australian Prime Minister Malcolm Turnbull takes a selfie with Sinead Engelbrecht (front left) and her brothers (L-R) Ronan, Liam and mother Hayley during a visit to the Telethon Kids Institute in Perth on Tuesday, August 1, 2017. Sinead had an extremely rare form of congenital glioblastoma (brain tumour) when she was just 10 weeks old and was given a less than 1% chance of survival. Sinead had surgery and 14 months of chemotherapy and is now cancer free although she has some challenges with fluid in her brain and spine. (AAP Image/Richard Wainwright) NO ARCHIVING","byline":null,"credit":null,"copyrightByline":"RICHARD WAINWRIGHT","copyrightCredit":"AAPIMAGE","crops":[],"original":{"format":"image/jpeg","reference":"https://images.thewest.com.au/publication/B88553607Z/GRN15ILUF.1-0.jpg"}},{"kind":"image","id":"GRN15IM00.1","name":"010817genmalcolm12","captionText":"POOL PIC - Australian Prime Minister Malcolm Turnbull talks with Dr Jason Waithman, Head of Cancer Immunology (left) as Sinead Engelbrecht and her family look on during a visit to the Telethon Kids Institute in Perth on Tuesday, August 1, 2017. Sinead had an extremely rare form of congenital glioblastoma (brain tumour) when she was just 10 weeks old and was given a less than 1% chance of survival. Sinead had surgery and 14 months of chemotherapy and is now cancer free although she has some challenges with fluid in her brain and spine. (AAP Image/Richard Wainwright) NO ARCHIVING","byline":null,"credit":null,"copyrightByline":"RICHARD WAINWRIGHT","copyrightCredit":"AAPIMAGE","crops":[],"original":{"format":"image/jpeg","reference":"https://images.thewest.com.au/publication/B88553607Z/GRN15IM00.1-0.jpg"}},{"kind":"image","id":"GSV15IH1S.1","name":"010817genpm005","captionText":"Prime Minister Malcolm Turnbull visits the Telethon Kids Institute: Miles Russo, who has been treated for her autism at the institute, is pictured with the PM and his father Ian. He’s using an app called Toby which is a trial based therapy for people with Autism. 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","intentions":[]},{"kind":"text","text":"Mr Turnbull found time in his WA schedule to meet Sinead and her family as part of an “inspiring” visit to the Telethon Kids Institute in Subiaco, where he praised the “world-class” medical research facility for improving the health and wellbeing of Australian children and their families.","intentions":[]},{"kind":"inline","reference":"","name":"010817genpm007","width":"","height":""},{"kind":"text","text":"“Western Australians should be proud of their Telethon,” he said. “It is literally saving lives and embodies the State’s generous spirit.”","intentions":[]},{"kind":"text","text":"Sinead’s mum Hayley said Sinead had endured chemotherapy and treatment and praised the institute for its work, saying the high-profile visit from the PM would help raise awareness.","intentions":[]},{"kind":"inline","reference":"","name":"010817genpm005","width":"","height":""},{"kind":"text","text":"“It is so imperative that this sort of thing gets out, it is all about funding research,” Mrs Engelbrecht said.","intentions":[]},{"kind":"text","text":"Sinead said she would “show all my friends” the selfie she had with Mr Turnbull.","intentions":[]},{"kind":"text","text":"Joined by deputy Liberal leader Julie Bishop and Finance Minister Mathias Cormann, Mr Turnbull also met the Russo family, whose twins Isla and Miles were both diagnosed with autism spectrum disorder.","intentions":[]},{"kind":"inline","reference":"","name":"010817genmalcolm1","width":"","height":""},{"kind":"text","text":"Mr Russo said he was happy to talk about his family’s story, to highlight the difference the institute had made to their lives and the importance of medical research funding.","intentions":[]},{"kind":"text","text":"“The funding is ... for the researchers and they are spearheading the way, so we have to keep that ball rolling,” he said.","intentions":[]}]},{"kind":"head-kicker","text":"‘Inspiring’"},{"kind":"heading","text":"Turnbull praises ‘world class’ Telethon research facility"},{"kind":"homepage-head","text":"Telethon kid patients inspire Malcolm Turnbull"},{"kind":"homepage-teaser","text":"PM finds time in his WA schedule to visit the Telethon Kids Institute in Subiaco."},{"kind":"main-image","width":"","height":"","name":"010817genmalcolm12"},{"kind":"main-video","referenceId":"5527663569001","heading":"","videoDescription":"Malcolm Turnbull went to the Telethon Kids' Institute in Perth.","posterImage":{"reference":"https://snappytv-a.akamaihd.net/image/sourceflv/755a2-291p755/2017-08-01T10-21-31.366Z--640x360.jpg?h=e4497220c59e1fab3f892c04642098d0","width":"","height":"","original":{"format":"","reference":""}},"name":"PM takes time out to visit Telethon"}],"isSponsored":false,"redirectUrl":null,"canonicalUrl":null,"blogState":null}
As a baby, Sinead Engelbrecht was diagnosed with an aggressive brain cancer and given a less than one per cent chance of survival. But fast-forward eight years and yesterday the sprightly cancer survivor was happily posing for selfies with Prime Minister Malcolm Turnbull. Mr Turnbull found time in his WA schedule to meet Sinead and her family as part of an “inspiring” visit to the Telethon Kids Institute in Subiaco, where he praised the “world-class” medical research facility for improving the health and wellbeing of Australian children and their families. “Western Australians should be proud of their Telethon,” he said. “It is literally saving lives and embodies the State’s generous spirit.” Sinead’s mum Hayley said Sinead had endured chemotherapy and treatment and praised the institute for its work, saying the high-profile visit from the PM would help raise awareness. “It is so imperative that this sort of thing gets out, it is all about funding research,” Mrs Engelbrecht said. Sinead said she would “show all my friends” the selfie she had with Mr Turnbull. Joined by deputy Liberal leader Julie Bishop and Finance Minister Mathias Cormann, Mr Turnbull also met the Russo family, whose twins Isla and Miles were both diagnosed with autism spectrum disorder. Mr Russo said he was happy to talk about his family’s story, to highlight the difference the institute had made to their lives and the importance of medical research funding. “The funding is ... for the researchers and they are spearheading the way, so we have to keep that ball rolling,” he said.